Resources for Families
Information, Support & Connection
Navigating cleft and craniofacial care can involve much more than medical appointments. Families may be looking for reliable information, financial support, opportunities for children and teens, or simply a way to connect with others who understand some of the same experiences.
We’ve gathered a selection of organizations, programs, and resources that may be helpful at different points along the way.
Resources and programs can change over time. Please visit the individual organizations for the most current information about services, eligibility, and availability.
Cleft & Craniofacial Organizations
Please copy over the organizations and groups with pics and links from the Saint Johns site here…
Financial Support & Opportunities
Families affected by cleft and craniofacial conditions may be eligible for financial assistance, scholarships, camps, and other supportive programs. We've gathered a few opportunities that may be worth exploring.
Resources on this page were reviewed in 2026. Programs, award amounts, eligibility requirements, and availability can change. Please confirm current information directly with the organization.
Scholarships
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Smile Train
Smile Train’s College Scholarship Program supports U.S.-based high school seniors born with a cleft by awarding two $5,000 scholarships annually. Applicants are asked to share their academic and extracurricular achievements, along with how their cleft journey has shaped their lives. This opportunity is part of Smile Train’s mission to empower cleft-affected individuals and celebrate their strength through education.
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The American Cleft Palate Craniofacial Association (ACPA)
The ACPA offers two $5,000 scholarships and one $10,000 scholarship each year through the Randall/LaRossa College Scholarship Fund. Established in 2009, the fund honors Dr. Peter Randall and Dr. Don LaRossa for their lifelong commitment to improving the lives of individuals with cleft and craniofacial conditions.
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FACES Camp
The National Craniofacial Association offers full and travel scholarships for camp, including a "Bring A Buddy" option to support kids with anxiety about being away from home. For over 50 years, FACES has provided information, support, and financial assistance to families of children with craniofacial conditions, helping them access life-changing care.
Books & Stories
Books That Can Help Children Feel Seen
Books can offer children a way to talk about surgery, facial differences, friendship, bullying, confidence, and feeling different. A few that families may find helpful include:
Ava the Brava
A story told through the relationship between a brother and his younger sister as she prepares for cleft-related surgery.
Turtle Boy
A middle-grade story about a twelve-year-old boy with a facial difference navigating friendship, courage, and stepping outside his comfort zone.
Then I'd add a subsection:
Friendship, Belonging & Bullying
Some books aren't specifically about cleft or facial differences but can still help children explore experiences that may feel familiar.
Real Friends
Stick With Me
The Great Wall of Lucy Wu
Out of Place
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