Health & Care Planning Roadmap
Planning ahead for health and care is about more than completing an advance directive. It means thinking through what matters to you, choosing the people you trust to speak for you, putting your wishes in writing, and making sure your plan can actually be found and used when it is needed.
You do not need to make every decision at once. The steps below can help you understand the pieces and work through them over time.
1 - CLARIFY WHAT MATTERS TO YOU
Think about the values and priorities you would want to guide your care and help others make decisions with, or for, you.
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Your health care proxy is the person you legally designate to make health care decisions if you are unable to make them yourself. Depending on where you live, this person may also be called a health care agent or medical power of attorney.
Choosing this person is both an emotional and a practical decision. The person you are closest to is not automatically the person best suited to make difficult medical decisions on your behalf.
Some things to consider:
Does this person understand what matters to you and what you would want?
Could they carry out your wishes even if they would make a different choice for themselves?
Are they comfortable asking questions and speaking up with medical professionals?
Could they make a difficult decision under stress or in an emotionally charged situation?
Would they be able to handle disagreement or pressure from other family members?
It is also helpful to choose an alternate in case your first choice is unavailable or unable to serve.
Choosing someone other than a spouse, partner, or oldest child doesn't mean you love or trust them less. The goal is to choose the person best able to understand your wishes and carry them forward when you cannot speak for yourself.
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You don't need to anticipate every possible medical situation. Instead, think about how you would want someone to approach decisions you haven't specifically addressed.
Some people feel strongly about particular treatments or outcomes and want their wishes followed as closely as possible. Others would rather describe their general values and give someone they trust flexibility to make decisions based on the circumstances at the time.
Consider:
Are there medical treatments or interventions you already feel strongly about?
Would you want your decision-maker to follow your stated wishes very closely, or have flexibility when circumstances are different from what you anticipated?
Who else would you want included in important conversations?
Would you want certain family members, physicians, or others consulted even if they are not your legal decision-maker?
How would you want disagreements among people involved in your care to be handled?
You are not trying to write a script for every possible medical situation. You're giving the people around you a framework for making decisions that still feel like your decisions.
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Health care decision-making isn't always an all-or-nothing situation. A person may need more support with complex decisions while still being very capable of expressing what they want, what they don't want, and what matters to them.
Thinking ahead can include questions such as:
If your memory, reasoning, or judgment changed, how would you want others to support you in making decisions?
If you could participate in a decision but needed help understanding or weighing the options, who would you want involved?
If you eventually could not make a particular decision yourself, what would you want the person stepping in for you to keep in mind?
Where would you prefer to receive care, when possible—at home, in a hospital, or in another care setting?
Are there cultural, spiritual, religious, family, or personal traditions that you would want respected as part of your care?
Needing help with decision-making does not necessarily mean losing your voice. Good planning helps the people around you understand not only when they may need to step in, but how to keep you involved as much as possible.
2 - CHOOSE WHO WILL SPEAK FOR YOU
Think about the people you would trust to help make decisions, provide medical guidance, and keep the different pieces of your care connected if your health needs change.
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Your health care proxy is the person you legally designate to make health care decisions if you are unable to make them yourself. Depending on where you live, this person may also be called a health care agent or medical power of attorney.
Choosing this person is both an emotional and a practical decision. The person you are closest to is not automatically the person best suited to make difficult medical decisions on your behalf.
Some things to consider:
Does this person understand what matters to you and what you would want?
Could they carry out your wishes even if they would make a different choice for themselves?
Are they comfortable asking questions and speaking up with medical professionals?
Could they make a difficult decision under stress or in an emotionally charged situation?
Would they be able to handle disagreement or pressure from other family members?
It is also helpful to choose an alternate in case your first choice is unavailable or unable to serve.
Choosing someone other than a spouse, partner, or oldest child doesn't mean you love or trust them less. The goal is to choose the person best able to understand your wishes and carry them forward when you cannot speak for yourself.
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Your doctors and other health care providers bring a different kind of voice to the conversation. They can explain what is happening medically, what options are available, the likely benefits and burdens of treatment, and what different choices may mean for you.
As health needs become more complicated, however, there may be many providers involved—and each may know a different part of the story. A primary care physician may know you over many years, while a specialist may have deeper expertise in one particular condition. Hospital physicians may be making recommendations during a crisis without knowing you well at all.
Consider:
Which provider knows you and your overall health best?
Who understands not only your diagnoses, but how you function in everyday life?
If several specialists are involved, who helps put their recommendations together?
Is there a physician you trust to help you and your family understand the bigger picture?
Do your providers know what matters to you, or mostly know what is in your medical record?
Ideally, health care decisions bring together medical expertise with an understanding of you as a person: your health, your goals, your values, and the life in which those decisions will actually be lived.
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Not everyone involved in your care needs to be a legal decision-maker or medical professional. Often, one or more people become the connectors, the people who notice what's happening day to day, attend appointments, keep track of information, communicate with different providers, or help family members understand what is going on.
This might be a spouse or partner, adult child, sibling, close friend, caregiver, or another trusted person. As needs become more complicated, a professional such as a care manager may also help coordinate care and communication.
Some things to consider:
Who is likely to notice changes in your health or day-to-day functioning?
Who could attend an important appointment or help you keep track of medical information?
Who is good at communicating with doctors and asking follow-up questions?
Who could help information move between different providers or family members?
If your care became more complicated, would someone realistically have the time and ability to take on this role?
These people don't all need formal titles or equal responsibility. And your connector does not have to be the same person as your health care proxy. The goal is to think about who you trust for what, and how the people involved in your care can work together rather than in separate pieces.
3 - PUT THE RIGHT DOCUMENTS IN PLACE
Health and care planning comes with a lot of overlapping terminology. Understanding what the different documents actually do, and what they don't do, can make the process much less confusing.
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Advance directive is an umbrella term for documents that allow you to plan for future medical decisions in case you are unable to make or communicate those decisions yourself.
Two of the most important pieces of advance planning are:
A living will
Puts your wishes and preferences for medical care in writing.A health care proxy / medical power of attorney document
Names another person to make health care decisions for you if you cannot make them yourself.Depending on the state and the form being used, these may be separate documents or combined into a single advance health care directive.
This terminology can be confusing because the same or similar words are sometimes used differently. For example, “health care proxy” may refer to the person you appoint, while a health care proxy form is the document you use to appoint that person.
And advance directives are specifically about health care. They do not give someone authority over your finances, distribute your property after death, or replace financial powers of attorney, wills, or trusts.
Think of an advance directive as the category: one part communicates your wishes; another identifies who can speak for you.
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A living will is a legal document that describes the medical care you would or would not want if you could no longer make or communicate those decisions yourself.
It can provide guidance about things such as:
life-sustaining treatments, including ventilation, artificial nutrition and hydration, or dialysis
CPR and resuscitation preferences
comfort-focused or palliative care
the circumstances in which you would want particular preferences to apply
other wishes related to serious illness, injury, or loss of decision-making capacity
But a living will does more than create a list of “yes” and “no” treatments. It can help your decision-maker and medical team understand how your preferences relate to your larger values—comfort, independence, longevity, connection with others, or whatever matters most to you.
A Living Will Is Not a Last Will & Testament
This distinction deserves to be conspicuous.
Despite the shared word will, these are completely different documents.
A living will addresses health care decisions during your lifetime if you cannot communicate your wishes.
A last will and testament addresses matters after your death, such as distribution of property and assets, naming an executor, and potentially guardianship of minor children.
A living will also does not automatically create a medical order such as a DNR. We'll get to that distinction below.
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This is where I think we should explicitly acknowledge the language problem rather than pretending it doesn't exist.
A health care proxy commonly means the person you choose to make health care decisions for you if you cannot make them yourself.
But you'll also encounter terms such as:
health care agent
health care representative
medical power of attorney
durable power of attorney for health care
And confusingly, “health care proxy” can also be used to describe the legal document that names that person. The terminology varies by state.
The important distinction is between:
The person: the individual you've chosen to make decisions.
The document: the legal instrument that formally gives that person authority.
This is why the work you did in the previous roadmap step, choosing the right person and talking with them, is separate from completing the paperwork. The document gives someone authority; your conversations and written wishes help them know how you want that authority used.
I'd then have a small state-specific note/link here rather than trying to explain all 50 states.
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A HIPAA authorization or release allows health care providers to share protected medical information with the people you designate.
This is another distinction that's easy to miss:
Being allowed to receive information is not the same as being allowed to make decisions.
You might want an adult child, sibling, caregiver, or other trusted person to speak with your doctors, receive updates, or help coordinate appointments even though someone else is your legally designated health care proxy.
That brings us back to the different roles from the previous section: your proxy, medical team, and care connectors don't necessarily need the same authority—but they may need to communicate with one another.
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Some medical decisions require something different from an advance directive: an actual medical order.
A living will can express what you would want. A medical order tells health care professionals what to do in a specific clinical situation.
DNR — Do Not Resuscitate
Directs that CPR not be attempted if your heart stops.DNI — Do Not Intubate
Directs that intubation/mechanical ventilation not be used if you stop breathing or cannot breathe adequately.A DNR or DNI applies to those specific interventions. It does not mean “do not treat.” Other appropriate medical treatment can still be provided.
POLST / MOLST — Orders for Life-Sustaining Treatment
These forms address a broader range of treatment decisions and are generally intended for people with serious illness, advanced frailty, or complex medical needs. They are completed with a clinician and are designed to translate current treatment wishes into actionable medical orders that can follow someone across care settings.These documents aren't something every healthy adult needs simply because they're planning ahead. They become relevant when someone's health circumstances make these treatment decisions more immediate.
4 - MAKE YOUR PLAN ACCESSIBLE
A plan is only useful if the people who may need it know what you want, where to find important information, and how to access it when the time comes.
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Written documents are important, but they can't capture every situation that might arise. Talking with the people who may someday be involved in your care gives them something documents alone cannot: a better understanding of how you think and what matters to you.
These conversations don't have to happen all at once or cover every possible medical scenario. They can happen naturally over time and become more specific as your health or circumstances change.
Some things to consider:
Does your health care proxy understand why you chose them and what you would want them to consider when making decisions?
Have you talked about what quality of life means to you, not just particular treatments you would or wouldn't want?
Do the people closest to you know who you have chosen to make decisions?
Are there wishes or priorities that might surprise your family or be difficult for them to carry out?
Would it help to include your physician or another trusted provider in some of these conversations?
The goal isn't to make sure everyone agrees with every choice. It's to make it less likely that the people you care about will someday be left wondering, “What would they have wanted me to do?”
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In an emergency or sudden change in health, even a well-designed plan won't help much if no one can find it. Think about who might need what information—and how they would actually get it.
Important information might include:
your advance directive and health care proxy documents
any current medical orders, such as a DNR or MOLST/POLST
medication and allergy information
names and contact information for important physicians and other providers
insurance information
emergency contacts and the people authorized to receive medical information
where original documents and other important records are stored
Your health care proxy should know where your documents are, and appropriate family members or trusted supports may need copies. Ask your medical providers which documents should also be included in your medical record.
Think practically, too. “It's somewhere in my filing cabinet” isn't very helpful during a hospitalization. The right information should be secure, but it also needs to be accessible to the right people when they need it.
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Planning ahead isn't something you complete once and never revisit. Your health can change, relationships change, people move, and your own priorities may look different at 75 than they did at 55.
It's a good idea to review your plan periodically and whenever something significant changes.
Consider revisiting it after:
a new diagnosis or meaningful change in health or functioning
a hospitalization or major medical event
changes in memory, thinking, or decision-making abilities
the death, illness, move, or other change in circumstances of someone you've named
a marriage, divorce, new relationship, or other significant family change
a move to another state, where forms or requirements may differ
Reviewing doesn't necessarily mean changing anything. Sometimes it simply confirms that the people you've chosen, the documents you've completed, and the wishes you've expressed still reflect what you want today.
| Term | In Everyday Language |
|---|---|
| Advance Directive | The umbrella term for documents that communicate your health care wishes and/or name someone to make decisions for you. |
| Living Will | Puts your wishes about future medical care in writing. |
| Health Care Proxy / Agent | The person you choose to make health care decisions for you. |
| Health Care Proxy / Medical POA Document | The legal document that gives your chosen person authority to act. |
| HIPAA Authorization | Allows designated people to receive or discuss your health information. |
| DNR / DNI / POLST / MOLST | Medical orders addressing specific treatment decisions. |
| Last Will & Testament | Addresses your estate and other matters after death—not your health care decisions. |
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